Clinician education
Explore continuing medical education (CMEs) and other programs that are available for healthcare providers to learn about primary immunodeficiencies (PI).
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
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Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Featured education programs
IDF often partners with other health organizations and academic institutions to host learning opportunities about PI. Some programs may be eligible for continuing medical education (CME) credit.
Navigating congenital athymia: Expert insights and best practices for optimal care
How do you care for an infant born without a thymus?
This educational activity is intended for an audience of allergists/clinical immunologists, transplant surgeons, and pediatricians in the United States. The goal of this activity is for learners to better recognize and integrate best practices for managing congenital athymia (CA).
Physicians - Maximum of 0.25 AMA PRA Category 1 Credit(s)™
Navigating PI: Community health partner series
Provided by Project ECHO at Penn State College of Medicine and the Immune Deficiency Foundation, this virtual series prepares key health partners, such as community health workers, patient navigators, and school nurses, to serve the PI community. The curriculum provides an overview of up-to-date, evidence-based recommendations, resources, and guidelines for patients with PI. Topics include employment with PI, navigating healthcare systems, and caregiver fatigue. While the live sessions have concluded, recordings of the sessions are available for free online.
Understanding PI: Clinician education series
Provided by Project ECHO at Penn State College of Medicine and the Immune Deficiency Foundation, this virtual education series helps providers recognize the signs of PI and the appropriate and timely steps to diagnosis. This series also provides an overview of up-to-date, evidence-based treatment recommendations and guidelines for patients with PI. While the live sessions have concluded, recordings of the sessions are available for free online.
Providing Enhanced Medical Support for Patients with PI: A Patient-Guided Intervention to Ensure Patient Engagement During a Global Pandemic and Beyond
In 2021, the American Academy of Allergy, Asthma and Immunology (AAAAI), the AXDEV Group, and the Immune Deficiency Foundation (IDF) conducted a survey of over 300 PI patients. The findings indicated a need to address healthcare providers' skills and confidence in recognizing signs and symptoms of PI, the use and interpretation of diagnostic tests, how to engage patients in essential health discussions, and maintaining optimal patient care via telehealth. This AAAAI online, CME-eligible program helps address these gaps and is available on demand through July 2025.
On-demand video presentations
As a clinician, you know “when you hear hoof beats, think of horses. Not zebras.” But sometimes your mindset should turn to zebras—or rare diseases like PI. People with PI are the zebras of the medical world.
Hiding in plain sight
Watch the following video to learn more about identifying, managing, and monitoring immune dysregulation disorders across the clinical spectrum. This webinar explores complex cytopenias and hyperinflammatory disorders.
Watch video
Finding a zebra in your practice
Do you have patients in your practice with recurring infections, chronic illnesses, and undiagnosed conditions? Learn more about recognizing the clinical symptoms of PI, establishing a diagnosis, and exploring treatment options.
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Found a zebra? Now what?
Do you have patients in your practice with a PI diagnosis? Find out what you need to know about immunoglobulin replacement therapy and novel treatments to care for children and adults with PI, as well as outside resources for clinicians and patients.
Watch video
Video course for nurses
Originally developed as continuing education courses by the IDF Nurse Advisory Committee, these videos provide important background for any clinician involved with the administration and management of immunoglobulin (Ig) therapy or the disease states where immunoglobulin is used.
More resources for clinicians
Diagnosing PI
IDF offers tools and resources to help healthcare providers across many specialties recognize patients who may have undiagnosed PI.
Access resources
Consulting immunologist program
Connect for free with an immunologist specializing in PI to go over the diagnosis, treatment, or management of patients with PI.
Consult with a specialist
Clinical trials
Share information with your patients with PI about the importance of clinical trials and find trials for new diagnostics or treatments that they may be eligible for.
Explore trials
Thank you to the following organizations for their support of IDF's medical outreach and education programs.
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