Living with primary immunodeficiency
Living with primary immunodeficiency (PI) can feel isolating, but you don't have to go through it alone. You can connect with other adults living with PI and find support, encouragement, and understanding.
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
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Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
For caregivers of children with PI
Caring for children
Caregivers of children with PI face numerous challenges, including helping their child understand their condition, managing medical treatments, and adjusting to life with PI.
Support your child
PI and school
If your child has PI, it can affect their education by causing them to miss more school days. But there is a lot you can do to ensure your child receives the same educational opportunities as their peers.
Plan your child's education
Navigating health insurance
Understanding insurance coverage can be daunting, especially for those with a chronic illness like PI. IDF has gathered resources to help you know your insurance options, navigate the claims process, and advocate for the coverage you need.
PI and other illnesses
COVID-19
Individuals living with primary immunodeficiencies should understand their risk for COVID-19 and any complications, as well as know how to prevent the virus.
Know your COVID-19 risk
Influenza
Some people with PI may have a higher risk for flu complications. Learn more about flu prevention, including annual flu shots.
Know your flu risk
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