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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Cropped stock photo from handbook cover.

IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Sixth Edition (Korean)

March 07, 2025
Medicare Ig therapy coverage decision tree.

Medicare Ig therapy coverage flowchart

March 06, 2025
Nurse examining patient with text: "Decoding PI: The science of gene therapy ​and gene editing".

Decoding PI: The science of gene therapy ​and gene editing

March 03, 2025
thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicXTwenties: Transitioning from pediatric to adult care with Riley and Nick

March 03, 2025
Researcher studying DNA

Study uses genomic screening to look for PI in newborns

February 27, 2025
Immune Deficiency Foundation text logo

Bold Conversations: Health insurance

February 21, 2025
Advocacy

Statement on federal policy changes: Pledge to protect the immunocompromised

February 21, 2025
Myles Temple holding his stem cells for BMT

Powerlifter with SCID finds strength in family, friends, and faith

February 19, 2025
Cropped stock photo from handbook cover.

Manual para pacientes y familias sobre inmunodeficiencias primarias, sexta edición

February 19, 2025
Medicare

Take time to compare original Medicare versus Medicare Advantage

February 06, 2025
Researcher examines blood

Ensoma launches clinical trial to prepare for CGD gene therapy

February 06, 2025
Noro 3

Norovirus surge requires vigilance from PI community

January 30, 2025
Drs. Aisha Ahmed and Elena Hsieh.

Care transition and systems immunology experts join advisory committee

January 27, 2025
Ig

Grifols Therapuetics withdraws two lots of Xembify

January 24, 2025
Denise Reich painting

Patient advocacy writer draws on experience with CVID

January 23, 2025
DNA strand with Immune Deficiency Foundation Logo and text "Lunch and Learn: IPEX Syndrome

Lunch & Learn: IPEX syndrome

January 23, 2025
Immune Deficiency Foundation text logo

Living well with PI: Mental health and wellness tips

January 21, 2025
Two people doing yoga on a beach with text that reads "Living well with PI: Mental health and wellness tips

Living well with PI: Mental health and wellness tips

January 17, 2025

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.