Community partners
Learn more about resources shared and events hosted by our partners that might be of interest to those with primary immunodeficiency (PI) and the clinicians who treat individuals with PI.
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
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Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Highlighted events and resources
Explore self-infusing with Ig: Patient education with Q & A sessions
Date & time: Twice each month (various dates) at 8:00 p.m. (ET). The program runs through June 2025
Hosted by: CSL Behring
A free virtual educational program for primary immunodeficiency (PI) patients and their caregivers. These programs feature a presentation from a trained nurse and stories from a PI patient advocate.
Get support throughout your treatment journey
Resource: Ongoing medication support
Provided by: CVS Specialty
Learn about immunodeficiencies and how CVS Specialty can support you throughout your treatment journey, including traveling with medications and managing side effects.
Navigating congenital athymia: Expert insights and best practices for optimal care
Date & time: Runs through August, 2025
Hosted by: Immune Deficiency Foundation and Medscape Education
This educational activity is intended for an audience of allergists/clinical immunologists, transplant surgeons, and pediatricians in the United States. Physicians maximum of 0.25 AMA PRA category 1 credit(s)™.
National Colloquium on African American Health
Date & time: March 27-30, 2025
Location: Hilton Washington DC Capitol Hill
Hosted by: National Medical Association
This topic of this event is Transforming Population Health: The Promise of Health Equity Across Therapeutic Areas to Improve Quality and Span of Life. Schedule of events and registration information can be found on the National Medical Association website.
Do you have an event or resource that you'd like to share?
All listings are subject to Immune Deficiency Foundation approval.
This page contains general medical and/or legal information that cannot be applied safely to any individual case. Medical and/or legal knowledge and practice can change rapidly. Therefore, this page should not be used as a substitute for professional medical and/or legal advice. Additionally, links to other resources and websites are shared for informational purposes only and should not be considered an endorsement by the Immune Deficiency Foundation.
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