The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
There are typical costs associated with having a disease, such as equipment and prescription drugs, but the costs are much higher for patients with rare diseases. Managing Chronic Granulomatous Disease (CGD) can place a significant financial burden on families and add up rapidly. The National Organization for Rare Disorders (NORD), a patient advocacy organization for individuals with rare diseases, is currently offering a program to families or individuals diagnosed with CGD and in need of financial support when faced with limited resources to pay for unexpected or emergency expenses. To learn more about this program, click here.
This content should not be used as a substitute for professional medical advice. In all cases, patients and caregivers should consult their healthcare providers. Each patient’s condition and treatment are unique. The benefits and risks of any treatment should be discussed with the patient's provider.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
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