The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
The House of Representatives passed the Newborn Screening Saves Lives Reauthorization Act (H.R. 2507), a bill to eliminate preventable newborn deaths and severe disabilities through the increased use of comprehensive and standardized newborn screening tests.
This bipartisan legislation reauthorizes critical federal activities that help states improve and expand their newborn screening programs, support newborn screening education for parents and providers, and ensure laboratory quality and surveillance. The bill renews funding for the programs of the Newborn Screening Saves Lives Act, which was originally introduced in the House by Reps. Congresswoman Lucille Roybal-Allard (CA-40) and Congressman Mike Simpson (ID-02), and was passed and signed into law in 2008. The Newborn Screening Saves Lives Act was last reauthorized in 2014.
While the bill still needs to pass through the Senate to become a law, this is a remarkable first step towards that goal. A Senate companion bill, S. 2158, was introduced by Senators Maggie Hassan (D-NH) and Cory Gardner (R-CO).
Receive news and helpful resources to your cell phone or inbox. You can change or cancel your subscription at any time.
The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
Combined Charity Campaign | CFC# 66309