The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Check out a new IDF video filmed entirely in Spanish! As the parents of a child living with PI, Carolina and Mauricio explain in this video that further research is needed to improve the diagnosis, treatment and quality of life for current and future generations living with PI, including their young son and others in the community.
Watch as Carolina and Mauricio talk about their family’s journey with PI and the importance of their son’s participation in IDF research. Click here to watch the video.
By sharing their experiences of living with PI, the family is helping to advance the scientific research of PI. If you're interested in learning more about how to contribute to research, contact us at research@primaryimmune.org.
This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
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