The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
The Immune Deficiency Foundation (IDF) commissioned a national survey of the treatment experiences and preferences of patients with primary immune deficiency diseases in the fall and winter of 2002. A total of nearly 1,200 patients with primary immune deficiency diseases with were being treated with intravenous immunoglobulin (IVIG) therapy, completed an eight-page, self-administered questionnaire as part of the survey.
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