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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Colemans

Family navigates both CVID and SAD diagnoses

November 07, 2024
Frank final

85-year-old with PI celebrates 500th immunoglobulin infusion

August 23, 2024
IDF video

Common variable immune deficiency (CVID): Conversation with an expert: 2024 PI Conference

August 05, 2024
bird

Volunteer established PI education groups 33 years ago

May 08, 2024
woman standing in yellow flowers

Physical therapist understands PI as patient and provider

March 21, 2024
Woman with zebra stripes on face 2

Adulting with PI support group leader specializes in trauma

January 31, 2024
undiagnosed podcast graphic

Undiagnosed (feat. The Autism Dad): Father and Son

December 05, 2023
Woman with her hand to her head and article title.

Study shows CVID patients at higher risk for neurologic issues

September 15, 2023
A woman and a health care professional have a discussion.

Clinical trial explores biologic treatment for CVID lung condition

August 31, 2023
IDF Podcast Graphic

Fireside chat with Emily V. Gordon

August 17, 2023
Josh Cash pilots a small plane.

NIH, IDF support young adult in his journey with PI

July 19, 2023
CDawgVA honors fellow streamer Ironmouse with auction for IDF.

CDawgVA honors fellow streamer Ironmouse with auction benefitting IDF

June 21, 2023
Jirsa Friends

Young adult with CVID strives to improve others’ lives

May 30, 2023
IDF Podcast Graphic

Community Q&A: primary immunodeficiency & neurological issues with Dr. Stacey Clardy

April 19, 2023
laptop

Primary immunodeficiency & neurological issues

April 18, 2023
undiagnosed podcast graphic

Undiagnosed episode 1: "The caretaker"

March 06, 2023

CVID diagnosis sheds light on a lifetime of infections

February 09, 2023
Susan Day is surrounded by her family, from left, son Jackson, husband Jason, and son Jace.

Mom’s common variable immune deficiency diagnosis explains lifelong infections and fatigue

January 09, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.