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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Bob LeBien and family

Bob LeBien’s leadership a guiding force for IDF and IPOPI

December 04, 2024
Ariana thumbnail

Get Connected Groups expand to meet PI community needs

November 14, 2024
Frank final

85-year-old with PI celebrates 500th immunoglobulin infusion

August 23, 2024
beach scene

New documentary film released

August 20, 2024
bird

Volunteer established PI education groups 33 years ago

May 08, 2024
Scientist wearing glasses uses dropper to perform work in lab

PI diagnosis sparks PhD candidate’s neuroimmunology research interest

February 09, 2024
Woman with zebra stripes on face 2

Adulting with PI support group leader specializes in trauma

January 31, 2024
Carol Ann Demaret holds her son David Vetter in July 1977.

Carol Ann Demaret advocated for SCID—and IDF

September 20, 2023
Person typing on a computer

Volunteer spotlight: Rafhaela (Ella) Vedia

September 13, 2023
Pre-med student Victoria Medl, who has PI, eyes a career in immunology.

Young adult volunteer and pre-med student eyes career in immunology

June 15, 2023
Jirsa Friends

Young adult with CVID strives to improve others’ lives

May 30, 2023
Taylor Kane feeds her father John Kane, diagnosed with adrenoleukodystrophy (ALD), which affected his physical and cognitive functioning.

Remember The Girls empowers women affected by X-linked conditions

March 30, 2023
Susan Day is surrounded by her family, from left, son Jackson, husband Jason, and son Jace.

Mom’s common variable immune deficiency diagnosis explains lifelong infections and fatigue

January 09, 2023
Person typing on a computer

IDF Peer Support volunteers provide encouragement and assistance

November 14, 2022

Family coping with chronic granulomatous disease relies on tight bonds

August 31, 2022

SCID advocate devotes herself to helping parents navigate medical world

May 13, 2022
Person typing on a computer

Donor spotlight: Lois Crudden

October 27, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.