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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Man sitting at his desk on the phone.

Template letters of medical necessity for immunoglobulin

September 04, 2024
IDF video

Ig treatment and companion therapies: 2024 PI Conference

August 05, 2024
insurance policy

Insurers block immunoglobulin access using multiple tactics

May 01, 2024
Ig graphic

Immunoglobulin product booklet

May 01, 2024
Matthew Jacobsen at 13, far right, with his father, mother, Gina, and sister (from left to right).

UnitedHealthcare beneficiaries fight for access to immunoglobulin

March 14, 2024
Stethoscope lying on top of insurance policy papers

Alternative funding programs hinder access to medications

February 26, 2024
A person walking through health insurance options

Update: UnitedHealthcare drops four immunoglobulin products from policies

November 02, 2023
Ig graphic

Priority Health won’t cover SCIG as first-line treatment

October 31, 2023
IG safety graphic

Safety important for successful immunoglobulin replacement therapy

October 24, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Treatment options for the PI community

May 08, 2023
Gloved hand holding vial of immunglobulin.

Immunoglobulin inaccessible to some disabled by PI

April 25, 2023
Person typing on a computer

Medicare Home IVIG Benefit: FAQs

January 19, 2023
Person typing on a computer

History of the Medicare IVIG Access Demonstration Project

January 02, 2023
Person typing on a computer

Home IVIG becomes a permanent Medicare benefit after a decade

December 23, 2022

From plasma to copay accumulators, IDF achieves advocacy wins

December 14, 2022
Person typing on a computer

Report shows health benefits of Medicare IVIG Demonstration

November 28, 2022
Couple making a payment

Paying for immunoglobulin replacement therapy

November 14, 2022
laptop

Hyper IgE/Job syndrome Lunch & Learn

November 08, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.