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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Volunteer spotlight: Rafhaela (Ella) Vedia

September 13, 2023
Gary Newton with his wife and granddaughter.

Lung condition leads to PI diagnosis after two-year medical odyssey

August 21, 2023
IDF Podcast Graphic

Fireside chat with Emily V. Gordon

August 17, 2023
Bryce Powerman visits his NIH doctors.

Bone marrow transplant curative for man with DOCK8 deficiency

August 09, 2023
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Undiagnosed episode 3 (ft. Ironmouse): "The performer"

August 04, 2023
Josh Cash pilots a small plane.

NIH, IDF support young adult in his journey with PI

July 19, 2023
CDawgVA honors fellow streamer Ironmouse with auction for IDF.

CDawgVA honors fellow streamer Ironmouse with auction benefitting IDF

June 21, 2023
Pre-med student Victoria Medl, who has PI, eyes a career in immunology.

Young adult volunteer and pre-med student eyes career in immunology

June 15, 2023
Jirsa Friends

Young adult with CVID strives to improve others’ lives

May 30, 2023
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Bone marrow transplant restores health of boy with CGD

May 18, 2023
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Undiagnosed episode 2: "The gardner"

May 01, 2023
Woman dancer holding arms out

Dancer with Wiskott-Aldrich syndrome wins Arnold fitness contest

April 28, 2023
Taylor Kane feeds her father John Kane, diagnosed with adrenoleukodystrophy (ALD), which affected his physical and cognitive functioning.

Remember The Girls empowers women affected by X-linked conditions

March 30, 2023
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Undiagnosed episode 1: "The caretaker"

March 06, 2023

CVID diagnosis sheds light on a lifetime of infections

February 09, 2023

Son with chronic granulomatous disease goes through BMT with family’s support

January 25, 2023
Susan Day is surrounded by her family, from left, son Jackson, husband Jason, and son Jace.

Mom’s common variable immune deficiency diagnosis explains lifelong infections and fatigue

January 09, 2023

New campaign offers important personal perspective for the immunocompromised community and COVID-19

December 19, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.