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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Research summary: Educational and support needs for families living with SCID

May 06, 2020
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Medical kit for clinicians

July 29, 2019
Cropped stock photo from handbook cover.

IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Sixth Edition

June 30, 2019
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Sample letter from provider appealing denial of authorization of immunoglobulin therapy

October 17, 2018
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Tips for prior authorization and appealing denials for healthcare professionals

October 17, 2018
IDF video

Course for nurses: SCIG therapy

May 10, 2018
IDF video

IVIG therapy

May 10, 2018
IDF video

Overview of Ig therapy and disease states it which it is utilized

May 10, 2018
IDF video

Primary immunodeficiencies: Combined T cell and/or B cell immune defects

May 10, 2018
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IDF Guide for Nurses Immunoglobulin Therapy for Primary Immunodeficiency Diseases, Fourth Edition

July 21, 2016
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Clinical Focus: Diagnostic Approaches to Antibody Deficiencies

October 14, 2015
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IDF Diagnostic & Clinical Care Guidelines for Primary Immunodeficiency Diseases, Third Edition

August 12, 2015
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Clinical Focus: Subcutaneous Immunoglobulin Replacement

June 17, 2015
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Clinical Focus: Chronic Granulomatous Disease

June 12, 2013
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Clinical Focus: Clinical Update in Immunoglobulin Therapy for Primary Immunodeficiency Diseases

March 16, 2011
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Clinical Focus: Primary Humoral Immunodeficiency Optimizing IgG Replacement Therapy

October 15, 2003
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Clinical Focus: The Clinical Presentation of Primary Immunodeficiency Diseases

August 16, 2000
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Clinical Focus: Treatment and Prevention of Viral Infections in Patients with Primary Immunodeficiency Diseases

December 15, 1999

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.