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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Gloved hand uses tweezers to remove a section of a paper drawing of DNA.

Gene therapy makes headway in PI treatment

October 17, 2024
Langenhop kids sitting on a bench and smiling

Siblings treated for LAD-1 with gene therapy remain healthy

August 30, 2024
IDF video

Hematopoietic stem cell transplantation (HSCT) and gene therapy for WAS: 2024 PI Conference

August 05, 2024
IDF video

Gene therapy: 2024 PI Conference

August 05, 2024
Jax and Lincoln Ramirez in pool

Boy with IPEX treated with gene therapy at Stanford University

July 19, 2024
Genetics

Addressing accessibility of gene and cell therapies

January 24, 2024
IDF Podcast Graphic

ADA-SCID Gene Therapy Update with Dr. Donald Kohn

December 11, 2023
gene editing

Gene editing shows promise for Wiskott-Aldrich syndrome

November 30, 2023
IDF video

Lunch and Learn: ADA-SCID Gene Therapy Update

October 26, 2023
map with points marked on journey

SCID: Questions for your child's healthcare team

September 10, 2023
Gene editing strategy for XLA with Dr. Donald Kohn's headshot.

Blaese awardee is developing a gene editing strategy to treat XLA

June 02, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Treatment options for the PI community

May 08, 2023

Study shows gene therapy is effective for Artemis-SCID

February 01, 2023

Gene therapy for ADA-SCID shows promise

October 13, 2022
laptop

SCID Compass Lunch and Learn: An ADA-SCID gene therapy update

October 06, 2022

UCLA researcher to update status of ADA-SCID gene therapy trials

August 30, 2022

CGD symptoms vary with superoxide production

May 02, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.