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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Hospital emergency entrance.

I Am A Transplant Patient emergency card

August 22, 2024
IDF video

Hematopoietic stem cell transplantation (HSCT) and gene therapy for WAS: 2024 PI Conference

August 05, 2024
IDF video

Emerging immunotherapies for PI: 2024 PI Conference

August 05, 2024
Ezra toddler 2

Teen hosts podcast featuring peers with hyper IgM syndrome

May 31, 2024
Cristiano

Mom advises parents to research and advocate for CGD

November 14, 2023
Maria, Eva, Tony, and Antonio Banda.

Brother with CGD gets lifesaving stem cell donation from sibling

October 11, 2023
map with points marked on journey

SCID: Questions for your child's healthcare team

September 10, 2023
Print Material Fallback

SCID: What healthcare providers need to know

September 10, 2023
chart/table with categories

SCID family journey

September 10, 2023
Bryce Powerman visits his NIH doctors.

Bone marrow transplant curative for man with DOCK8 deficiency

August 09, 2023
Closeup of a newborn's tiny feet and toes.

Study shows newborn screening improved SCID survival rates

July 13, 2023
Person typing on a computer

Bone marrow transplant restores health of boy with CGD

May 18, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Treatment options for the PI community

May 08, 2023

Monitoring chimerism after transplant is critical to good health

April 21, 2023
IDF video

Lunch & Learn: What is chimerism?

March 24, 2023

SCID bone marrow transplant can result in chronic long-term health effects

December 15, 2022
laptop

Organ function and long-term outcomes following hemopoietic stem cell transplants for SCID

November 30, 2022
laptop

Hyper IgE/Job syndrome Lunch & Learn

November 08, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.