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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

woman writing in health records

Maintaining health records improves care with a PI diagnosis

January 13, 2025
Older man and kid show off their band aids after getting vaccine.

Vaccines protect the immunocompromised

December 12, 2024
Man with mask grocery shopping.

Masks protect the immunocompromised

December 12, 2024
Bold conversations thumbnail

Bold Conversations: CGD and medical immigration with Susanna Raj

October 08, 2024
Bold Conversations thumbnail with an image of Dr. Nicole Rochester

Bold Conversations: Inclusion in practice at the 2024 PI Conference

August 28, 2024
Hospital emergency entrance.

I Am A Transplant Patient emergency card

August 22, 2024
IDF video

Communicating your diagnosis: Your care team & beyond: 2024 PI Conference

August 05, 2024
Two ambulances parked outside of a hospital emergency room.

¡Estoy inmunodeprimido! tarjeta de emergencia

April 18, 2024
Living will papers with eyeglasses and pen

Advance directives provide peace of mind for patients and families

March 11, 2024
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Volunteer spotlight: Rafhaela (Ella) Vedia

September 13, 2023
IDF Think Zebra logo

THINK ZEBRA! poster

July 24, 2023
Image of a woman and teen having a mother-son talk.

Teach teens with PI how to transition their healthcare

June 29, 2023
Couple navigating healthcare

Navigating access to quality care

November 21, 2022
IDF Podcast Graphic

Navigating access to quality care with primary immunodeficiency

September 28, 2022

Educate schools on primary immunodeficiency to better support your child

August 27, 2022
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Guide for students with primary immunodeficiency updated for back-to-school season

August 23, 2022
Print Material Fallback

Patient advocacy engagement toolkit

August 09, 2022
Two ambulances parked outside of a hospital emergency room.

I Am Immunocompromised emergency card

July 18, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.