The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Last week, to honor Rare Disease Day, thousands of people around the globe took time to advocate and raise awareness about rare diseases and their impact on patients’ lives. With only five percent of all rare diseases having an FDA-approved treatment, there is tremendous unmet need that requires innovative collaborations and continued conversations across the healthcare spectrum. As part of the day, a robust forum was held in Washington, DC, to discuss the challenges and opportunities in rare disease research. Among the people attending was a spirited 10-year-old boy, Ja’cori, who lives with chronic granulomatous disease (CGD). Ja’cori’s journey with CGD, which was transformed into song that reflects the love, worry and sunny outlook of this little boy’s life, closed the evening and brought the house down. To learn more about the inspiring evening, click here. To listen to Ja'cori's song, click here.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
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