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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Gloved hand uses tweezers to remove a section of a paper drawing of DNA.

Gene therapy makes headway in PI treatment

October 17, 2024
IDF video

Chronic granulomatous disease (CGD) overview: 2024 PI Conference

August 05, 2024
IDF video

Emerging diagnostics & therapies for chronic granulomatous disease (CGD): 2024 PI Conference

August 05, 2024
Cristiano

Mom advises parents to research and advocate for CGD

November 14, 2023
Maria, Eva, Tony, and Antonio Banda.

Brother with CGD gets lifesaving stem cell donation from sibling

October 11, 2023
A microscopic view of blood cells and viruses.

Study examines procedure to treat severe CGD infections

July 25, 2023
Person typing on a computer

PI research grants span diagnosis, T cell biology, and new treatments

June 02, 2023
Person typing on a computer

Bone marrow transplant restores health of boy with CGD

May 18, 2023
undiagnosed podcast graphic

Undiagnosed episode 2: "The gardner"

May 01, 2023

Son with chronic granulomatous disease goes through BMT with family’s support

January 25, 2023

NIH clinical trial explores fecal transplant for CGD colitis

December 08, 2022

Family navigates toddler’s chronic granulomatous disease

November 29, 2022
Person typing on a computer

Bone marrow transplant shows promise for chronic granulomatous disease

October 22, 2022
Person typing on a computer

Journal chronicles bone marrow transplant for CGD

September 29, 2022

Family coping with chronic granulomatous disease relies on tight bonds

August 31, 2022

CGDAA empowers, connects CGD community

July 28, 2022

Study finds CGD carriers exhibit symptoms of disorder

June 24, 2022
laptop

Lunch and Learn: CGD carrier study

May 31, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.