Skip to main content
IDF logo

Browse resources

Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Family together smiling

PI diagnosis can pose challenges in obtaining life insurance

October 24, 2024
Man sitting at his desk on the phone.

Template letters of medical necessity for immunoglobulin

September 04, 2024
Medicare

Take time to compare original Medicare versus Medicare Advantage

June 24, 2024
insurance policy

Insurers block immunoglobulin access using multiple tactics

May 01, 2024
Matthew Jacobsen at 13, far right, with his father, mother, Gina, and sister (from left to right).

UnitedHealthcare beneficiaries fight for access to immunoglobulin

March 14, 2024
Stethoscope lying on top of insurance policy papers

Alternative funding programs hinder access to medications

February 26, 2024
undiagnosed podcast graphic

Undiagnosed (feat. Dr. Kelley Hagerich): Two different traumas

December 19, 2023
Print Material Fallback

All Copays Count Coalition disappointed in decision to appeal court ruling

December 05, 2023
Woman shows pharmacist her phone.

Letter to Secretary Becerra on copay accumulator court decision

October 06, 2023
Print Material Fallback

Health plan cost comparison worksheet

July 21, 2023
Print Material Fallback

Personal health experience stat sheet

July 21, 2023
Gloved hand holding vial of immunglobulin.

Immunoglobulin inaccessible to some disabled by PI

April 25, 2023
Person typing on a computer

Medicare Home IVIG Benefit: FAQs

January 19, 2023
Person typing on a computer

History of the Medicare IVIG Access Demonstration Project

January 02, 2023
Person typing on a computer

Home IVIG becomes a permanent Medicare benefit after a decade

December 23, 2022
Person typing on a computer

Report shows health benefits of Medicare IVIG Demonstration

November 28, 2022
Couple making a payment

Paying for immunoglobulin replacement therapy

November 14, 2022
Person typing on a computer

How the Inflation Reduction Act tackles healthcare costs

September 02, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

lady looking at computer

Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.