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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicXTwenties: Heartbreakingly beautiful (Part 2)

October 30, 2024
IDF video

Serenity within: stress management for PI: 2024 PI Conference

August 05, 2024
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Adulting with PI support group leader specializes in trauma

January 31, 2024
IDF Podcast Graphic

Young adult roundtable: College, mental health, and PI

December 18, 2023
Healing the trauma of a life-changing PI diagnosis

Healing the trauma of a life-changing PI diagnosis

March 22, 2023
Person typing on a computer

Make mental health a priority in primary immunodeficiency care

December 21, 2022

Connect with others through IDF Caretakers Support Group

December 13, 2022
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The connection between mental and physical health

November 30, 2022
2022 PI Conference

The connection between mental and physical health

November 29, 2022

SCID uncertainty paper examines how parents cope

November 16, 2022
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Addressing caregivers’ mental health is key after SCID diagnosis

August 01, 2022

Parental mental health: Experiences across the SCID journey

July 14, 2022

(Español) Parental mental health: Experiences across the SCID journey

July 14, 2022

Mental health & coping with a SCID diagnosis

July 06, 2022

Cindy Kisik, adult with ADA-SCID, advocates for mental health awareness

June 13, 2022

SCID carrier discussion explores family planning, mental health

May 05, 2022
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Toolkit offers quick access to SCID diagnosis and treatment

February 19, 2022
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Managing stress & anxiety during the holiday season

November 09, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.