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Strategic partners

To fight health disparities, we founded a Strategic Partner Roundtable in 2022 to make sure that everyone is invited to the conversation about their own health. 

History & mission

The strategic partner roundtable, founded in 2022, is a united voice of organizations committed to sharing resources and strategies guided to reach underserved populations with information for those who are immunocompromised or have a primary immunodeficiency (PI).  

All members have agreed to:

  • Work collaboratively to raise awareness of primary immunodeficiency (PI) and provide resources to healthcare professionals representing and serving medically underserved populations.
  • Expand the diversity of PI educational and research opportunities.
  • Promote PI resources and education to reduce health disparities in underserved and marginalized communities.
  • Build synergy on PI and health priorities.  

Activities for 2025

Through these valuable partnerships, new individuals will learn more about PI in a myriad of ways.  Just a few include:

  • Members of our Medical Advisory Committee will provide continuing medical education (CME) session focuses on PI at three conferences in 2025: the National Hispanic Medical Association, National Medical Association, and National Pharmaceutical Association.
  • Several partners are sharing IDF resources on their own websites throughout the year, including a jointly created informational flyer.
  • IDF team members will join panel discussions at three conferences in 2025: Rare and Black Patient and Scientific Engagement Summit, HealthHIV Synchronicity Conference, and Rare Disease Diversity Coalition/National Minority Quality Forum Annual Summit.
  • The IDF team will be exhibiting at partner conferences and meetings and engage in shared advocacy issues related to accessibility. 

Meet the strategic partners

The Association of Minority Health Professions Schools, Inc. (AMHPS) was formed to provide a means by which the need for a national minority health agenda could be effectively addressed. It is comprised of twelve historically black medical, dental, pharmacy, and veterinary schools.

HealthHIV’s mission statement is to advance effective prevention, care, support, and health equity in HIV, HCV, LGBTQ health, and harm reduction by providing education, capacity building, health services research, and advocacy to organizations, communities and interprofessional healthcare teams.
 

The Hispanic Society for Rare Diseases is an association that promotes the participation of the Hispanic population in rare disease advocacy and research. We provide information and resources in Spanish and raise awareness on rare diseases.

La Sociedad Hispana de Enfermedades Raras (SHER) quiere incrementar la participación de pacientes y familias hispanas en la abogacía y en la investigación de enfermedades raras. Queremos promover la inclusión y el conocimiento para las familias hispanas que padecen enfermedades poco comunes.

The National Hispanic Health Foundation (NHHF) (501c3) was established in 1994 in Washington, DC. The foundation's mission is to transform the healthcare system through leadership, research and education to increase Hispanic health equity.

The National Medical Association (NMA) is the collective voice of African American physicians and the leading force for parity and justice in medicine and the elimination of disparities in health.

The National Pharmaceutical Association (NPhA), established in 1947, is dedicated to representing the views and ideals of minority pharmacists on critical issues affecting healthcare and pharmacy, promoting racial and health equity, as well as advancing the standards of pharmaceutical care among all practitioners.

"At Rare And Black, our mission is to empower and uplift Black patients living with rare disorders by raising awareness, promoting advocacy, driving legislative change, and improving access to crucial resources. Through unwavering dedication and collaborative efforts, we strive to eliminate the disparities and inequities faced by these individuals, ensuring they receive the support and care they deserve. By amplifying their voices and driving systemic change, we envision a future where every Black patient with a rare disorder can live a life of dignity, understanding, and equal opportunity."

Rare Disease Diversity Coalition is dedicated to addressing the extraordinary challenges faced by historically underrepresented rare disease patients as encompassed by social determinants of health (SDOH).

The Coalition brings together rare disease experts, patients, health care professionals, diversity advocates, and industry leaders to bring about evidence-based solutions that alleviate the disproportionate burden of rare diseases on marginalized populations.