
Strategic partners
To fight health disparities, we founded a Strategic Partner Roundtable in 2022 to make sure that everyone is invited to the conversation about their own health.
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
To fight health disparities, we founded a Strategic Partner Roundtable in 2022 to make sure that everyone is invited to the conversation about their own health.
The strategic partner roundtable, founded in 2022, is a united voice of organizations committed to sharing resources and strategies guided to reach underserved populations with information for those who are immunocompromised or have a primary immunodeficiency (PI).
All members have agreed to:
Through these valuable partnerships, new individuals will learn more about PI in a myriad of ways. Just a few include:
Your immune system might need attention. Take our self-assessment to check for signs of primary immunodeficiency and get questions to discuss with your healthcare provider.
Take our self assessmentMeet Dr. Nicole Rochester, the medical advisor for health equity for the Immune Deficiency Foundation. Rochester's unique clinical experience and family connection make her uniquely qualified to guide our work.
Read the announcementThe Association of Minority Health Professions Schools, Inc. (AMHPS) was formed to provide a means by which the need for a national minority health agenda could be effectively addressed. It is comprised of twelve historically black medical, dental, pharmacy, and veterinary schools.
HealthHIV’s mission statement is to advance effective prevention, care, support, and health equity in HIV, HCV, LGBTQ health, and harm reduction by providing education, capacity building, health services research, and advocacy to organizations, communities and interprofessional healthcare teams.
The Hispanic Society for Rare Diseases is an association that promotes the participation of the Hispanic population in rare disease advocacy and research. We provide information and resources in Spanish and raise awareness on rare diseases.
La Sociedad Hispana de Enfermedades Raras (SHER) quiere incrementar la participación de pacientes y familias hispanas en la abogacía y en la investigación de enfermedades raras. Queremos promover la inclusión y el conocimiento para las familias hispanas que padecen enfermedades poco comunes.
The National Hispanic Health Foundation (NHHF) (501c3) was established in 1994 in Washington, DC. The foundation's mission is to transform the healthcare system through leadership, research and education to increase Hispanic health equity.
The National Medical Association (NMA) is the collective voice of African American physicians and the leading force for parity and justice in medicine and the elimination of disparities in health.
The National Pharmaceutical Association (NPhA), established in 1947, is dedicated to representing the views and ideals of minority pharmacists on critical issues affecting healthcare and pharmacy, promoting racial and health equity, as well as advancing the standards of pharmaceutical care among all practitioners.
"At Rare And Black, our mission is to empower and uplift Black patients living with rare disorders by raising awareness, promoting advocacy, driving legislative change, and improving access to crucial resources. Through unwavering dedication and collaborative efforts, we strive to eliminate the disparities and inequities faced by these individuals, ensuring they receive the support and care they deserve. By amplifying their voices and driving systemic change, we envision a future where every Black patient with a rare disorder can live a life of dignity, understanding, and equal opportunity."
Rare Disease Diversity Coalition is dedicated to addressing the extraordinary challenges faced by historically underrepresented rare disease patients as encompassed by social determinants of health (SDOH).
The Coalition brings together rare disease experts, patients, health care professionals, diversity advocates, and industry leaders to bring about evidence-based solutions that alleviate the disproportionate burden of rare diseases on marginalized populations.
Bold Conversations” is hosted by Dr. Nicole Rochester, IDF’s Medical Advisor for Health Equity. This podcast aims to raise awareness for healthcare professionals serving medically underserved populations.
Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.
Learn more about resources shared and events hosted by our community partners, which include Immunocompromised Collaborative members, strategic partners, patient advocacy groups, and sponsors.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
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