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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Chapter 29: Hematopoietic Stem Cell Transplantation

June 30, 2019
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Chapter 30: Gene Therapy

June 30, 2019
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Chapter 31: Immunizations

June 30, 2019
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Chapter 32: Autoimmunity in Primary Immunodeficiency

June 30, 2019
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Chapter 33: Supplemental, Complementary, and Alternative Medicine in Primary Immunodeficiency

June 30, 2019
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Chapter 34: Secondary Immunodeficiencies

June 30, 2019
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Chapter 35: Chronic Sinusitis

June 30, 2019
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Chapter 36: Gastrointestinal (GI) Complications in Primary Immunodeficiency Diseases

June 30, 2019
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Chapter 37: Clinical Trials

June 30, 2019
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Chapter 38: General Care

June 30, 2019
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Chapter 39: Women's Health and Primary Immunodeficiency Disease

June 30, 2019
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Chapter 40: Employment and Primary Immunodeficiency Disease

June 30, 2019
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Chapter 41: Health Insurance

June 30, 2019
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Chapter 42: Infants and Children Living with Primary Immunodeficiency Diseases

June 30, 2019
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Chapter 43: Adolescents Living with Primary Immunodeficiency Diseases

June 30, 2019
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Chapter 44: Young Adults Living with Primary Immunodeficiency Diseases

June 30, 2019
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Chapter 45: Adults Living with Primary Immunodeficiency Diseases

June 30, 2019
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Chapter 46: Senior Adults Living with Primary Immunodeficiency Diseases

June 30, 2019

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.